About the series
NSF Distinguished Lecture Series in Social, Behavioral and Economic Sciences
Wednesday, November 12, 1:00pm, Room 110
Dr. Duana Fullwiley
"The Paradoxes and Perils of Racial Thinking in American Genome Science"
Since the early 2000's we have seen a resurgence of racial difference discourse within genetic science, and within medicine more broadly. Many scientific professionals argue that cataloging human biological difference through logics of race is exceedingly important to determine the genetic basis for health disparities. This turn of embracing potentially racialized biology to help, heal, and empower U.S. minorities marks a curious shift in the history and culture of science.
Through ethnographic study in several U.S. laboratories, I examine how geneticists go about trying to understand health disparities that disproportionately affect African Americans and Latinos. I discuss the social processes that are embedded in the scaffolding of their models, which tease out human genetic difference by continent of origin ("biogeographic ancestry") through comparisons of DNA taken from people who are thought to typify American racial categories. I will also examine how other scientists have held out the promise that full genome sequences "for all" might deliver us beyond racial thinking with personal genomics. I conclude by noting the potential political contradictions and tensions that operate at the core of certain DNA technologies and research sorting practices. At issue is how to best research human genome diversity in a cultural context that aspires to multicultural diversity within the U.S. At stake is how ideals of democratic inclusion and equal representation, with regard to DNA procurement and analysis for health problems, can paradoxically constrain and even undermine antiracist thinking when race is literally constructed as "biological."
Duana Fullwiley is an anthropologist of science and medicine interested in how social identities, health outcomes, and molecular genetic findings increasingly intersect. Her first book, The Enculturated Gene: Sickle Cell Health Politics and Biological Difference in West Africa (Princeton, 2011) which examines how structural adjustment policies in Africa affected both the lived experiences of sickle cell patients in Senegal and the genetic science about them, was awarded prizes by the American Anthropological Association and The Royal Anthropological Institute. She is currently finishing her second book entitled Tabula Raza: Mapping Race and Human Diversity in American Genome Science. Her work has been funded by the National Science Foundation, the Robert Wood Johnson Foundation, the Social Science Research Council, the Andrew and Florence White Fellows program in Medicine and the Humanities, the Ford Foundation, and the Wenner-Gren Foundation for Anthropological Research. She has also been an invited scholar at the Centre de Sociologie de l'Innovation in Paris (1997-1998, 2000 and 2002), a USIA Fulbright Scholar to Senegal, a fellow at the School of Social Science at the Institute for Advanced Study in Princeton (2004-2005), and a Robert Wood Johnson Health and Society Scholar at the Harvard School of Public Health (2005-2007). She recently completed a Scholars Award in NSF's Science, Technology & Society Program. Dr. Fullwiley is an Associate Professor in the Department of Anthropology at Stanford University.